My parents, Gabriel and I went to visit Chris and found him on his wheelchair in the main hall. He looked badly positioned, bending to one side but I know it is because of the way the spasticity is pulling him to his right side. It was same as usual; there aren’t changes on a weekly basis. Chris’ gaze looked less focused and precise, a bit spaced out which worries me a little bit. His arms were the same, his left arm, which received the Botox, was as tight as ever. I have this feeling that the Botox won’t do anything anymore.
We got there after his lunch time, the nurse told me he did not eat much. But he had the entire scraped apple my mom gave him and all his supplements. Chris smiled appropriately but did not respond to any questions I asked him. Overall he is very tight on his legs, trunk, and arms and looked tired today.
My mom and I did a lot of massage on him; I spent a good hour rubbing his feet with oil which made his hard rock feet become less rigid and more colorful. I clipped his nails as well.
It was heartbreaking to see Chris after 2 weeks… somehow you just do not want to walk back into the nightmare. I feel so much for the way Chris is living his life…
I will be going back tomorrow as we have some friends who came to spend the weekend with us: Yuki from NYC and Gabriela from Stockholm. Kathlyn from NY has just moved to London from NY and we will all be visiting Chris tomorrow with Gabriel.
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