Gabriel and I visited Chris shortly this evening from 6:30 to 7:30 PM after I got back from work. Chris was quietly laying in bed but became very vocal upon our arrival. He also got a bit agitated and was trying to lift his head up. Because of the way he was positioned, I could see he was having a very good tracking day as he would follow me around by lifting and turning his head off his pillow.

I have been talking on and off with OT’s this week about Chris’ arms and wrists. This evening the tone in both arms were VERY bad and Chris right wrists is deteriorating very quickly, so every second I spent with Chris consisted of making sure I did a lot of stretches. Chris wailed and screamed in pain at the slighest touch of his hands, fingers and wrists but unfortunately Chris need sto be stretched (my short visit’s stretching are not enough, the 6 hr evening and afternoon splintings haven’t been enough to prevent his current situation). I will have to follow up more next week from NY to make sure there is no further deterioration.

So most of my visit tonight consisted of torturing Chris by stretching his wrists and arms. Chris was extremely uncomfortable with pain, visibly hating the whole thing and sweating. Chris right arm moved by a good range every time he was in pain with my touching him. Anyway, this is just an observation: I have seen his right arm move subtly and today it was very evident that he moved that arm big time in response to pain.

I am so happy to have my very good friend Annemarie with us. I value and treasure all my friendships in a different level today because they made SUCH a difference in my life in this unthinkable and unbearable year. I love all my friends!!!